As many of you know my daughter has Neurofibromatosis Type 1 or simply put NF1. After we came back from Boston Children's we had a whole new game plan and Tayler was ready to be more open about what she had. She also wanted to help the children's tumor foundation by raising money for research.
We had the idea of a small family fundraiser that quickly became something larger. She now has a venue to hold it at at our local VFW post, people willing to donate their time by selling homemade cupcakes which they are donating half the profits to the foundation, a 50/50 raffle and a 31 raffle plus so much more.
One of our local papers is wanting to run a story about her, NF and her fundraiser! I could not be prouder if I tried. She truly is my hero because in the face of adversity she continues to shine.
If you want to know about her fundraiser or how to donate online comment and I'll give you the details and the link to her webpage for online donations. Lets work together and end NF!
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Sunday, May 19, 2013
Wednesday, May 8, 2013
Date set for NF Fundraiser
As many people know my daughter Tayler has neurofibromatosis type 1 or rather NF 1 to save space. She has wanted to host a fundraiser to not only raise money but raise awareness as well. NF effects more people than Cystic Fibrosis and Muscular Dystrophy COMBINED and yet no one knows about it.
We are going to do a Tea for NF on June 22,2013. We are doing an actual and a virtual tea. The link to our webpage is http://ctf.kintera.org/teafornf2013/taylerscrusaders
The website is set up through The Children's Tumor Foundation and 100% of what we raise goes to them for research.
She has set a goal of $100.00 and I'm hoping she makes it. Lets help raise money and awareness for the children affected by this so that we can end NF one day.
We are going to do a Tea for NF on June 22,2013. We are doing an actual and a virtual tea. The link to our webpage is http://ctf.kintera.org/teafornf2013/taylerscrusaders
The website is set up through The Children's Tumor Foundation and 100% of what we raise goes to them for research.
She has set a goal of $100.00 and I'm hoping she makes it. Lets help raise money and awareness for the children affected by this so that we can end NF one day.
Wednesday, May 1, 2013
What's your passion?
Everyone has a passion, some people have more than one. Your passion can de
scribe you or just entertain you in your free time. I don't have a whole lot of free time between working full time, my 2 kids, husband, 2 dogs and now 3 cats as ours just had kittens. What I have learned to do is have my kids join in. Now this may not be feasible for everyone depending on what your passion(s) is.
For me I can bring my kids in on at least 2 of my passions. I got the kids into tae bo, yoga and beating on the Wavemaster. At first it was not easy my 9 yr old is uncoordinated and was too self conscious at first even though we werep
in our living room. After a few weeks she fell in love with it and is now the one asking if we can put the DVD's in. My 2 yr old is very active already so tae bo was great for him, however yoga took a couple months ago for him.
My other passions are reading, writing and running. I can devour entire books in a day if I had the time. I read everything, I don't think there is an author or genre I will not try at least once. My bookshelves have everything from Dickens to E.L. James on them. I currently started writing a novel. I've written poetry since I was in 5th grade and was even published online, but I want to write a book people will love. I'm not saying it's going to be the next great american novel but something people will enjoy reading and hopefully not want to put down.
I love to run. It calms me down and I feel so much happier when I'm done. I've done some 5K's and this year would like to add an 8 and 10K in as well. I don't get to run everyday so when I do get the chance I take full advantage of it. I have a running bucket list with races I want to do including a color me rad, warrior run and a marathon.
So those are my passions, what are yours?
scribe you or just entertain you in your free time. I don't have a whole lot of free time between working full time, my 2 kids, husband, 2 dogs and now 3 cats as ours just had kittens. What I have learned to do is have my kids join in. Now this may not be feasible for everyone depending on what your passion(s) is.
For me I can bring my kids in on at least 2 of my passions. I got the kids into tae bo, yoga and beating on the Wavemaster. At first it was not easy my 9 yr old is uncoordinated and was too self conscious at first even though we werep
in our living room. After a few weeks she fell in love with it and is now the one asking if we can put the DVD's in. My 2 yr old is very active already so tae bo was great for him, however yoga took a couple months ago for him.
My other passions are reading, writing and running. I can devour entire books in a day if I had the time. I read everything, I don't think there is an author or genre I will not try at least once. My bookshelves have everything from Dickens to E.L. James on them. I currently started writing a novel. I've written poetry since I was in 5th grade and was even published online, but I want to write a book people will love. I'm not saying it's going to be the next great american novel but something people will enjoy reading and hopefully not want to put down.
I love to run. It calms me down and I feel so much happier when I'm done. I've done some 5K's and this year would like to add an 8 and 10K in as well. I don't get to run everyday so when I do get the chance I take full advantage of it. I have a running bucket list with races I want to do including a color me rad, warrior run and a marathon.
So those are my passions, what are yours?
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