As many people know my daughter Tayler has neurofibromatosis type 1 or rather NF 1 to save space. She has wanted to host a fundraiser to not only raise money but raise awareness as well. NF effects more people than Cystic Fibrosis and Muscular Dystrophy COMBINED and yet no one knows about it.
We are going to do a Tea for NF on June 22,2013. We are doing an actual and a virtual tea. The link to our webpage is http://ctf.kintera.org/teafornf2013/taylerscrusaders
The website is set up through The Children's Tumor Foundation and 100% of what we raise goes to them for research.
She has set a goal of $100.00 and I'm hoping she makes it. Lets help raise money and awareness for the children affected by this so that we can end NF one day.
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